Demographic characteristics of participants
| Variable | Age group 1 | Age group 2 | Age group 3 | Total |
|---|---|---|---|---|
| (x/8) | (x/19) | (x/16) | (x/43) | |
| Sex | ||||
| Male | 5 (62%) | 11 (58%) | 8 (50%) | 24 (56%) |
| Female | 3 (38%) | 8 (42%) | 8 (50%) | 19 (44%) |
| Age now | ||||
| Mean (range) | 33.5 (21,44) | 49 (39,77) | 61 (49,79) | 48 (21,79) |
| Age at diagnosis | ||||
| Mean (range) | 15 (4,35) | 18 (5,30) | 41 (27,52) | 25 (4,52) |
| Race | ||||
| White | 8 (100%) | 16 (84%) | 16 (100%) | 40 (93%) |
| African-American | 0 | 3 (16%) | 0 | 3 (7%) |
| Religion | ||||
| Catholic | 3 (38%) | 5 (26%) | 5 (31%) | 13 (30%) |
| Protestant | 4 (50%) | 9 (47%) | 7 (44%) | 20 (46%) |
| Jewish | 1 (12%) | 0 (0%) | 4 (25%) | 5 (12%) |
| Other/none | 0 (0%) | 5 (26%) | 0 (0%) | 5 (12%) |
| Relationship status | ||||
| Married | 6 (75%) | 13 (68%) | 14 (88%) | 33 (77%) |
| Single | 2 (25%) | 3 (16%) | 0 (0%) | 5 (12%) |
| Partner | 0 (0%) | 2 (1%) | 0 (0%) | 2 (0.5%) |
| Divorced/separated | 0 (0%) | 0 (0%) | 1 (6%) | 1 (0.2%) |
| Widowed | 0 (0%) | 1 (1%) | 1 (6%) | 2 (0.5%) |
| Grade level | ||||
| High school | 0 (0%) | 3 (16%) | 5 (31%) | 8 (19%) |
| Some college | 3 (38%) | 9 (47%) | 3 (19%) | 15 (35%) |
| 4 years at college | 3 (38%) | 4 (21%) | 3 (19%) | 10 (23%) |
| Post grad school | 2 (25%) | 3 (16%) | 5 (31%) | 10 (23%) |
| Income | ||||
| <$20 000 | 0 (0%) | 4 (21%) | 1 (0.6%) | 5 (12%) |
| $20 000–$34 999 | 1 (12%) | 3 (16%) | 5 (31%) | 9 (21%) |
| $35 000–$49 999 | 1 (12%) | 4 (21%) | 1 (0.6%) | 6 (14%) |
| $50 000–$74 999 | 1 (12%) | 5 (26%) | 3 (2%) | 9 (21%) |
| >$75 000 | 5 (62%) | 3 (16%) | 6 (38%) | 14 (32%) |
| Employment | ||||
| Full time | 5 (62%) | 8 (42%) | 4 (25%) | 17 (40%) |
| Part time | 1 (12%) | 2 (11%) | 3 (19%) | 6 (14%) |
| Retired | 0 (0%) | 0 (0%) | 7 (44%) | 7 (16%) |
| Unemployed | 2 (25%) | 9 (47%) | 2 (12%) | 13 (305%) |
| Affiliation | ||||
| FFB | 7 (88%) | 15 (79%) | 13 (81%) | 35 (81%) |
| Support group | 3 (38%) | 8 (42%) | 9 (56%) | 20 (46%) |
| Family history of RP | ||||
| Present | 3 (38%) | 3 (16%) | 1 (6%) | 7 (16%) |
| Absent | 4 (50%) | 10 (53%) | 13 (81%) | 27 (63%) |
| Unknown | 1 (12%) | 6 (32%) | 2 (12%) | 9 (21%) |
| Self identified as | ||||
| Sighted | 2 (25%) | 2 (10%) | 2 (12%) | 6 (14%) |
| In transition | 3 (38%) | 2 (10%) | 5 (31%) | 10 (23%) |
| Visually impaired | 3 (38%) | 15 (80%) | 9 (56%) | 27 (63%) |