Variation in mean child and parent VQoL and FV scores by clinical and sociodemographic characteristics
| VQoL_CYP* | FVQ_CYP* | |||||
|---|---|---|---|---|---|---|
| Mean | ICC (CI 95%) | Mean | ICC (CI 95%) | |||
| Child | Parent | Child | Parent | |||
| Age | ||||||
| 10–12 years | 71.2 | 65.5 | 0.58 (0.355 to 0.738) | 51.2 | 62.9 | 0.63 (0.219 to 0.839) |
| 13–15 years | 69.5 | 63.6 | 0.52 (0.229 to 0.729) | 46.5 | 57.9 | 0.61 (0.170 to 0.821) |
| Gender | ||||||
| Girls | 70.2 | 65.2 | 0.48 (0.195 to 0.689)† | 55 | 64.9 | 0.61 (0.195 to 0.813) |
| Boys | 70.8 | 64.6 | 0.62 (0.366 to 0.773) | 45.3 | 58.2 | 0.62 (0.095 to 0.828) |
| Vision level | ||||||
| VI (LogMAR 0.50–1.00) | 70.8 | 65.8 | 0.58 (0.386 to 0.719) | 45.2 | 57.6 | 0.53 (0.091 to 0.752) |
| SVI/blind (LogMAR worse than 1.00) | 69.3 | 60.8 | 0.47 (0.031 to 0.763) | 68.9 | 76.9 | 0.76 (0.115 to 0.928) |
| Timing of VI onset | ||||||
| Early (≤2 years) | 71.8 | 64.8 | 0.55 (0.296 to 0.723) | 47.6 | 60.3 | 0.54 (0.085 to 0.766) |
| Late | 67.6 | 64.8 | 0.57 (0.259 to 0.779) | 54 | 62.8 | 0.80 (0.344 to 0.926) |
| Course of visual loss | ||||||
| Stable | 71.9 | 65.1 | 0.52 (0.248 to 0.707) | 46.2 | 60 | 0.53 (−0.011 to 0.785) |
| Progressive | 68.8 | 64.5 | 0.60 (0.366 to 0.769) | 53.4 | 62.3 | 0.72 (0.383 to 0.862) |
| Child ethnicity | ||||||
| White British majority | 70.5 | 64.8 | 0.53 (0.321 to 0.683) | 48.3 | 59.6 | 0.62 (0.168 to 0.809) |
| Other UK minority | 71 | 64.8 | 0.67 (0.281 to 0.875) | 55.8 | 68.7 | 0.65 (0.049 to 0.888) |
| Deprivation (UK population quintiles) | ||||||
| 1, 2, 3 more deprived | 68.8 | 63.6 | 0.65 (0.420 to 0.801) | 52.3 | 64.9 | 0.55 (0.037 to 0.788) |
| 4, 5 least deprived | 73.5 | 66.6 | 0.51 (0.220 to 0.708) | 45.8 | 56.8 | 0.66 (0.227 to 0.838) |
*On VQoL_CYP, higher scores indicate better vision-related quality of life outcome, whereas on the FVQ_CYP, higher scores indicate greater functional vision difficulty.
†The results in italics show variation in agreement by different agreement categories (≤0.40=poor to fair, 0.41–0.60=moderate, 0.61–0.80=good, 0.81≤excellent) by group.
FV, functional vision; FVQ_CYP, functional vision questionnaire for children and young people; ICC, Intraclass Correlation Coefficients; LogMAR, logarithm of minimum angle of resolution; SVI, severe visual impairment; VI, visual impairment; VQoL_CYP, vision-related quality of life instrument for children and young people.