Characteristic | All patients | Groups based on years evolved since first symptoms | |||||
N=447* | 0–5 years, N=237* | 6–10 years, N=250* | 11–15 years, N=196* | 16–20 years, N=147* | 21–25 years, N=78* | 26–30 years, N=32* | |
Sex | |||||||
Males | 181 (40%) | 91 (38%) | 105 (42%) | 75 (38%) | 55 (37%) | 27 (35%) | 13 (41%) |
Females | 266 (60%) | 146 (62%) | 145 (58%) | 121 (62%) | 92 (63%) | 51 (65%) | 19 (59%) |
Age at visit | |||||||
Mean (SD) | 63 (12)† | 54 (11) | 58 (10) | 62 (10) | 65 (10) | 70 (10) | 73 (8) |
Years since first symptoms | |||||||
Mean (SD) | 12.9 (8)† | 3.1 (1) | 7.7 (1) | 12.4 (1) | 17.2 (1) | 22.3 (1) | 27.1 (1) |
Age at first symptoms | |||||||
Mean (SD) | 50 (11) | 51 (11) | 50 (10) | 50 (10) | 48 (10) | 48 (10) | 46 (8) |
Age at diagnosis birdshot | |||||||
Mean (SD) | 53 (12) | 53 (12) | 53 (11) | 52 (12) | 52 (11) | 52 (11) | 54 (8) |
Unknown | 158 | 36 | 94 | 91 | 58 | 20 | 8 |
Years from symptoms to diagnosis | |||||||
Mean (SD) | 2.0 (3.2) | 1.0 (1.0) | 1.6 (1.9) | 2.2 (3.0) | 2.9 (4.2) | 3.8 (4.9) | 6.6 (5.9) |
Unknown | 158 | 36 | 94 | 91 | 58 | 20 | 8 |
Follow-up | |||||||
Mean (SD) | 6.1 (5.6)† | 0.6 (0.7) | 2.7 (2.4) | 4.9 (3.9) | 7.6 (5.7) | 9.8 (6.9) | 8.7 (6.5) |
Median (range) | 5.2 (0.0–20.0) | 0.0 (0.0–2.9) | 2.2 (0.0–9.0) | 4.1 (0.0–13.0) | 6.0 (0.0–18.0) | 9.9 (0.0–20.0) | 6.9 (0.0–19.0) |
*n (%).
†At the last visit.