Table 1

Demographic features of all patients and in the six disease duration groups

CharacteristicAll patientsGroups based on years evolved since first symptoms
N=447* 0–5 years,
N=237* 		6–10 years,
N=250* 		11–15 years,
N=196* 		16–20 years,
N=147* 		21–25 years,
N=78* 		26–30 years,
N=32*
Sex
 Males181 (40%)91 (38%)105 (42%)75 (38%)55 (37%)27 (35%)13 (41%)
 Females266 (60%)146 (62%)145 (58%)121 (62%)92 (63%)51 (65%)19 (59%)
Age at visit
 Mean (SD)63 (12)†54 (11)58 (10)62 (10)65 (10)70 (10)73 (8)
Years since first symptoms
 Mean (SD)12.9 (8)†3.1 (1)7.7 (1)12.4 (1)17.2 (1)22.3 (1)27.1 (1)
Age at first symptoms
 Mean (SD)50 (11)51 (11)50 (10)50 (10)48 (10)48 (10)46 (8)
Age at diagnosis birdshot
 Mean (SD)53 (12)53 (12)53 (11)52 (12)52 (11)52 (11)54 (8)
 Unknown15836949158208
Years from symptoms to diagnosis
 Mean (SD)2.0 (3.2)1.0 (1.0)1.6 (1.9)2.2 (3.0)2.9 (4.2)3.8 (4.9)6.6 (5.9)
 Unknown15836949158208
Follow-up
 Mean (SD)6.1 (5.6)†0.6 (0.7)2.7 (2.4)4.9 (3.9)7.6 (5.7)9.8 (6.9)8.7 (6.5)
 Median (range)5.2 (0.0–20.0)0.0 (0.0–2.9)2.2 (0.0–9.0)4.1 (0.0–13.0)6.0 (0.0–18.0)9.9 (0.0–20.0)6.9 (0.0–19.0)

  • *n (%).

  • †At the last visit.